The national deputy of the Frente de Todos Rodolfo Tailhade thought to make public that He is waiting for a kidney transplant. “I had not told it before because it did not seem necessary to me, until Javier Milei’s public speech appeareda person who, according to electoral polls, may be President of the Nation”, the legislator told PROFILE.
tail tail suffering from a genetically transmitted kidney disease called polycystic disease that has no cure. IS one of the 30 thousand people on dialysis YuNo of the 7 thousand Argentines registered in the Incucai to receive an organ donation. “I have had the disease since I was born. At the age of 18 I began to undergo medication treatment and I have been on dialysis for two and a half years. I had not told it before because it did not seem necessary to me, until the public speech of javier milei“, said.
“Faced with such a dangerous speech, from such an important person, he decided to tell my story, which is the story of thousands of Argentines who are kidney patients and thousands of others who are on the waiting list; people who deserve the last thing son speeches of this nature, which shock and generate much concern and consternation in families”, he explained.
Javier Milei once again supported the sale of organs: “We are looking for market mechanisms”
According to the deputy, the majority of people who undergo dialysis do not have social work and attend public institutions. that’s why Faced with a discourse that sees organ trade as feasible, “these families are collapsing.” In his case, Tailhade has siblings who are undergoing studies to be newborns, but his mother, who suffered from the same disease, spent six years on dialysis. Fortunately he got a transplant and had a survival of 20 more years.
Knowing the problem closely, the legislator concluded a project this Thursday, June 1 in Congress to promote organ donation, since “between 4 and 7 thousand organs are lost per year in the country, nobody warns that there is a person because brain death in such a place”.
“The issue that there are people who spend 13, 14, 15 years on dialysis is one of the main concerns that patients have,” avoid. The example to take to reverse this, according to Tailhade, is that of Spain where no one spends more than two years on dialysis because a transplant is guaranteed in that period.
The deputy announced that tomorrow in the Chamber of Deputies a draft declaration of interest of the Procurar programa program of the Ministry of Health “that points out that in large hospitals, especially throughout the country, there is a unit for the procurement of organs and tissues.”
The program demands that one or two professionals be attentive to cases of possible organ donation. “The main problem we have is that we are not able to detect the number of organs available, that is, between four and seven thousand organs are lost every year in the country because no one warns that there is a brain dead person in such a place. With a procurement unit in each hospital, that is considerably reduced, ”she stressed.
Tailhade’s message through his social networks about his health and organ donation
On May 30, for National Organ Donation Day, the deputies shared a message on social networks where they revealed their illness and that they are waiting for a transplant. Through a video he recounted: “Only 4 out of every thousand people who die are eligible to donate organs. and many times the donation does not materialize because the hospitals do not have the necessary structure to preserve the organs”.
“Since I was born, I have suffered from kidney disease for which, to this day, there is no known cure: polycystic disease. It is a genetic disease that he inherited from my mother who, in turn, inherited it from her father. Over time, the disease caused my kidneys to stop working. And, for more than two years, I have been one of the 30,000 Argentines who are on dialysis ”, he introduced.
He added that despite the Justina Law (approved in 2018 and which provides that “any capable person over the age of 18” is a possible organ or tissue donor, unless they have expressly stated otherwise) that, “Despite the solidarity of Argentine men and women who express their willingness to donate, getting organs is not easy”.
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